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This page was developed as a closed resource for our IAMRARE™ Registry Community. If you are registry staff, please log in through the community portal link in your registry. If you have already logged in, please click the lock icon on the right and continue to the portal. If you would like more information about NORD's research initiatives and the IAMRARE Registry Program, please visit our website at rarediseases.org or contact research@rarediseases.org. Thanks for stopping by. We hope to hear from you!

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